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Various documents • 
   Short summaries   
   Manuals, examples   
   Videos   
   Scientific publications   
   Basics   
   Book contributions   
   Awards   
   Other information   

 

Manuals, project support, documentation, multimedia files, publications

This page offers links to a number of files which may not be viewable with your browser alone, but may require additional programs instead. Try to view the files by clicking on the links first. If this should not work, please consult this help-page.

Summarizing information

Covering both implementations of the QL-Recorder Covering the original QL-Recorder using GraTaSim and AnyQuest for MS-DOS

Instructions, tutorials, examples

The QL-Recorder using AnyQuest for Windows

The original QL-Recorder using GraTaSim and AnyQuest for MS-DOS

Outcome measurement in general and project design

Videos

Video files are relatively large, you should only try to download them via a fast Internet connection.

If you want to view the videos multiple times, or if you have relatively slow Internet access, you can download each video file to your computer, and afterwards play it directly from your computer as many times as you want.

  • AnyPak2 Tutorial 1: First questionnaire administration for a new patient. Recording the patient ID, using an RFID token (could also be a barcode scanner, interface to other software, or manual input), using the electronic questionnaire, correcting an answer, automatically generated printout of computed results (German audio track).
    The demo runs on a WeTab Tablet-PC with Intel Atom CPU, touch screen and a simple USB RFID reader. Installed software is Windows 7, PDFCreator, Foxit Reader, and the revised AnyPak package published in June, 2012.
  • AnyPak2 Tutorial 2: Follow-up questionnaire administration for a patient that is already known. Providing the patient ID, patient recognition, using the electronic questionnaire, automatically generated printout with cumulative result (German audio track).
  • AnyPak2 Tutorial 3: How to locate and display results from previous assessments. Automatically produced PDF documents or paper printouts with computed results of a single questionnaire administration, cumulative results, and a representation resembling a filled in questionnaire (German audio track).

How to play the videos:

  • The videos were tested with Media Player Classic (very capable player that consists only of one single program file), Zoom Player, DivX Video Player, totem, kaboodle, QuickTime Player, MS Windows Media Player, as well as diverse installed codecs, e.g. ffdshow.
  • mp4-files: Video: H.264. Audio: AAC.
    The smallest files, but requires the newest player software and the highest computation power.
  • divx-files: Video: DivX MPEG-4 Version 5. Audio: mp3.
  • mpg-files: Video: MPEG-2. Audio: MPEG1-Audio-Layer-II.
    The largest files (or files in lower resolution), can usually be played by older player software, and even by hardware DVD players.
  • Your WWW browser might be able to play videos on its own.
  • If you click on a link, and then see an Apple QuickTime Logo with a questionmark, or a page with seemingly random text on it, your system does not know how to handle the file you just clicked at. Please try a video file in another format in this case, or ask someone who knows about your computer and multimedia for assistance.

Scientific publications from applications of the QL-Recorder

Many of the following publications are available on-line with open-access.

Usage of electronic patient questionnaires on QL-Recorders with eQLQ-C30 and SGRQ in 14 general practices/family practices
Feasibility and acceptance by staff and patients in a multicenter project to select site-specific instruments (PRO-ONKO), incl. example of automatically computed graphic display of results
Feasibility, acceptance, and cross-validation of a Chinese QL-Recorder based eSF-36 and a paper based SF-36
Feasibility, acceptance, costs, and cross-validation of the eSIRO on 4 QL-Recorders compared to the SIRO on paper
Routine care and research use of 5 QL-Recorders for screening of oncology outpatients with eQLQ-C30, HADS and other questionnaires
Research on the impact of pregnancy, migration, and incontinence in a university clinic for obstetrics and gynaecology
  • Mautner E, Greimel E, Egger J, Trutnovsky G, Lang U
    Quality of life outcomes in pregnancy and postpartum complicated by hypertensive disorders, gestational diabetes and preterm birth.
    Journal of Psychosomatic Obstetrics and Gynecology 2009; accepted for publication - in press.
  • Mautner, Eva
    Schwangerschaft und Geburt, medizinische und psychosoziale Einflussfaktoren auf die Lebensqualität und Befindlichkeit.
    Promotionsarbeit, Universitat Graz, 2008.
  • Bjelic-Radisic V, Dorfer M, Greimel E, Frudinger A, Tamussino K, Winter W
    Quality of life and continence 1 year after the tension-free vaginal tape operation.
    Am J Obstet Gynecol 195:1784-8, 2006. PMID: 17132481
Routine care and research use of the QL-Recorder with various questionnaires in paediatric psychiatry and psychotherapy
Usage of 2 QL-Recorders for proxy-rating with multiple instruments during questionnaire development / validation of an instrument
Usage for routine tumour documentation and on-demand analysis in a group of clinics
  • Höhmann D, Hager ED, Sigle J
    Prognostische Signifikanz von EORTC QLQ-C30 Daten für Patienten mit Pankreaskarzinom.
    [Prognostic significance of EORTC QLQ-C30 data for patients with pancreatic carcinoma.]

    DZO 2003; 35: 59-69 (2003)
  • Höhmann Dirk
    Klinische Signifikanz von EORTC QLQ-C30-Daten für die Prognose von Patienten mit Mamma-, Pankreas-, Ovarial und Kolorektalem Karzinom.
    [Clinical significance of EORTC QLQ-C30 data for the prognosis of patients with Breast, Pancreatic, Ovarian and Colorectal Cancer.]

    Doctoral thesis. University of Witten-Herdecke, 2000. (pdf-file, 3840 KB) (German only)
Initial field testing in outpatient and inpatient settings

Additional literature, including additional doctoral theses, is listed further below and in the respective section of my CV.

Basics on health-related Quality-of-Life and electronic patient files

Book contributions

To comply with the publishers' preferences, I provide only titles of books and links to the publishers' respective on-line resources. Carl Hanser Verlag provide my diagram "Informationsspeicher und Informationsfluß in einem Rehaklinikum zur Berücksichtigung bei Planung und Implementation eines EDV-Systems" which has been published in their Handbuch Medizinische Informatik on their WWW pages as downloadable PDF-file.

  • Porzsolt F, Kojer M, Schmidl M, Greimel ER, Sigle J, Richter J, Eisemann M: A New Instrument to Describe Indicators of Well-Being in Old Old Patients with Severe Dementia: The Vienna List
    In: Porzsolt, F, Kaplan, RM (Ed.): Optimizing Health: Improving the Value of Healthcare Delivery
    Springer, ISBN 978-0-387-33920-7 (2006)
  • Porzsolt F, Kojer M, Schmidl M, Greimel ER, Sigle J, Richter J, Eisemann M: Fremdbewertung: Messung der Lebensqualität von Hochbetagten mit schwerer Demenz.
    In: Porzsolt F, Williams AR, Kaplan RM (Hrsg.): Klinische Ökonomik. Effektivität und Effizienz von Gesundheitsleistungen.
    Ecomed Verlagsgesellschaft, 310-321 (2003)
  • Sigle J: Electronically Supported Outcome Measurement.
    In: Beuth J, Moss RW (Ed.): Complementary Oncology.
    Thieme Stuttgart, New York, ISBN 3-13-137451-9 (GTV) ISBN 1-58890-323-0 (TNY) (2006)
  • Sigle J: Elektronisch unterstütztes Outcome Measurement.
    In: Beuth J (Hrsg.): Grundlagen der Komplementäronkologie.
    Hippokrates Verlag/Thieme Verlagsgruppe, ISBN 3-8304-5261-6 (2002)
  • Sigle J, Wilhelm HJ: Medizinisches Qualitätsmanagement. [Medical quality management.]
    In: Lehman T, Meyer zu Bexten E (Ed.): Handbuch der medizinischen Informatik.
    Carl Hanser Verlag, ISBN 3-446-21589-1 (2002)
  • Sigle J: Lebensqualitäts-Recorder. [Quality-of-Life-Recorder.]
    In: Viethen JG (Hrsg.): QM-Checklisten für das Gesundheitswesen.
    Forum Verlag (2002)
    Also in: Wilhelm HJ (Hrsg.): Direkt übernehmbare Vorlagen zum Qualitätsmanagement im Gesundheits- und Sozialwesen.
    Forum Verlag (2001)
  • Porzsolt F, Greimel E, Sigle J, Eisemann M: Lebensqualität. [Quality of life.]
    In: Höffken, K, Kolb G, Wedding U (Hrsg.): Geriatrische Onkologie.
    Springer Verlag, ISBN 3-540-67411-X, 141-151 (2001)
  • Sigle JM, Porzsolt F: Znormalizowana ocena jakosci zycia w ambulatorium Ocena konstrukcji i przydatnosci elektronicznego rejestratora jakosci zycia.
    In: Meyza L (Ed.): Jakosc Zycia W Chorobie Nowotworowej.
    Centrum Onkologii, Warzsawa, 147-166 (1997)

Award winning projects applying my technology

  • Jörg Sigle
    Conception and continued development & support of the Quality-of-Life-Recorder 1993-2009
    Abstract: Der Lebensqualitäts-Recorder: Ein Werkzeug zur Befragung von Patienten mit elektronischen Fragebögen in Forschung und Versorgung
    [The Quality-of-Life-Recorder: A tool for administration of electronic questionnaires to patients in research and routine care]
    Recognized as "partial lifetime achievement" :-) and awarded the Lilly Quality-of-Life Prize 2009.   -» About the award
    Thank you very much for this honour and the support of my work!
  • Eva Mautner, Josef W. Egger, Eva Greimel
    Pregnancy and Birth - The impact of medical and psychosocial factors on quality of life and wellbeing.
    Poster: International Society for Quality of Life Research. 25. Oktober, 2008
    This poster was awarded the New Investigator Award of the meeting.
  • Anja Rogausch, Jörg Sigle, Sabine Thüring, Michael M. Kochen, Wolfgang Himmel und die MedViP-II-Studiengruppe
    Elektronische Erhebung der Lebensqualität in der hausärztlichen Praxis.
    [Electronic assessment of quality of life in general practice]

    Poster: 40. Kongress der Deutschen Gesellschaft für Allgemein- und Familienmedizin e.V. (DEGAM), Potsdam (pdf-file)
    Abstract in Z Allg Med. 9, 82:19 (2006)
    This poster was awarded a poster-prize (2nd rank) of the meeting.
  • Claudia Preuß
    Patientenbefragung zur Lebensqualität und Behandlungszufriedenheit für Disease Management Programme bei Diabetes mellitus: Entwicklung von Werkzeugen und Machbarkeitsstudie.
    [Assessment of patient's health related quality of life and satisfaction with care within disease management programs for Diabetes Mellitus: Development of tools and feasibility study].

    Doctoral thesis. University of Heidelberg, 2006. (pdf-file, 830 KB) (German only)
    This thesis was awarded the Schwank-Prize 2007 by the Landesärztekammer Nordbaden.
    The project is an exception, as it does not use the QL-Recorder, but tools and processes to automatically generate pseudonymized multi-page patient questionnaires for mailing, and later automatic processing using optical-mark-recognition and bar-codes.
  • Lutz Goldbeck, Tim Schmitz
    Lebensqualität von Jugendlichen und Erwachsenen mit Mukoviszidose.
    [Quality of life in children and grown-ups with cystic fibrosis.]

    Abstract (pdf-file) (German only)
    This project was awarded the Lilly Quality-of-Life Prize 2002.
    It uses the QL-Recorder for routine administration of patient questionnaires; resulting data are transferred to MS Excel for further evaluation.

Presentation of the QL-Recorder at the MEDICA, Düsseldorf, by the Fraunhofer Gesellschaft IAO

Based upon their own positive experience, the Institut Arbeitswirtschaft und Organisation of the renowned Fraunhofer Gesellschaft chose the QL-Recorder as an example of innovative technology useful to face the the challenges emerging from contemporary changes in the field of medicine.


   
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